Friday, October 26, 2007

Aphasia victims find a voice in UA group

April R. Ford

Stroke and disease can sometimes cripple a person's ability to use and understand basic language. But a UA communication group offers a way for people with aphasia, a severe communication disorder, to re-establish who they are on their own terms.

"Aphasia is a language disorder, meaning it affects our ability to understand or use our words, vocabulary, grammar and all the pieces that go into framing a message," said Barbara Shadden, a professor at the College of Education and Health Professions.

The National Institute of Neurological Disorders and Stroke estimated that about a million people across the U.S. are affected by aphasia, which results from damage to the language parts of the brain.

Every person has their own sense of who they are, Shadden said, but the problem for victims of aphasia is that the idea of a self depends on how you use language.

For people who have suffered stroke or other disease, aphasia can hinder their ability to tell the world who they are, Shadden said.

"We all believe in our sense of self," Shadden said, "but the problem is it depends on others, and communication is the key."

A communication group was created at the UA's Speech and Hearing Clinic in 2004 to provide therapy to individuals having trouble telling their story because of aphasia. The group's focus centers on recreating the individual's sense of self through the development and communication of a life story, Shadden said.

Telling that story on their own terms is a crucial part of the communication group, said Patricia Koski, associate professor of sociology and criminal justice.

"People recreate a self," Koski said. "Although, if they don't have the tools to recreate that self, they are in danger of losing it in the sense that somebody else decides for them who they are or what they are capable of."

Members of the UA communication group use tools such as beliefs, gestures or words to share their life story with others.

A9.4: Participation Memo

Ashley Carr

October 19, 2007

Aims and Objectives:

This week, I set out to expand my knowledge of information within my research by continuing the research process, but by looking at it from a different perspective. This week it was important for me to go one step deeper into my research to seek information that I previously did not know. I also aimed for completing these assignments before Friday evening. This...Next....

STROKE GROUP GET INTO BOOKS

11:00 - 02 October 2007

A Reading group has been set up for people who have suffered a stroke or brain damage.

Members of Aphasia Nottingham have started sessions to share ideas about books, and help each other to understand them.

Aphasia is a condition which affects communication skills.

The group has the choice of audio or large-print versions of books from a library.

The next meeting is on Monday, October 15, at 2pm in Beeston Library

Books such as Chickenfeed by Minette Walters and The Builders by Maive Binchy are on the reading list.

Telephone Frances Cameron on 0115 937 4937 for more information.
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Horses visit Meadow Ridge residents

By CATHERINE SAMOSE

Horse ‘Honey’ with Maura Curry from HORSE of CT SENIORS meets Betty Poggenburg, who is about to turn 99. —Scott Mullin photo
Meadow Ridge residents were entertained last Wednesday by horses that traveled to Redding from their farm in New Preston.

“This is the second year we’ve had horses visit from HORSE of CT SENIORS,” said Joy Hodge, recreation director for assisted living at Meadow Ridge. “They’ve been really wonderful in coming. It’s an all-volunteer group. They interact with our residents. They bring carrots and special cookies for the residents to feed the horses.” The group brought a senior horse and a senior pony.

“These are retired horses and it makes sense that they should be with retired people,” said Kevin Curry, who volunteers with the group along with his brother Patrick and their sister Maura, who is program director. “The horses are also seniors. Coming here to visit senior humans is a nice program.”

“I think this is the most wonderful afternoon,” Peggy Smith, a Meadow Ridge resident, said. “It’s such a fun time because we’re getting to see the horses. And my little granddaughter is coming today. I hope they get here in time to see the horses.”

When spoken to, Charlotte Kelly could not respond because she has a condition called aphasia. “We converse without language,” her assistant said. “She is wonderful. She really is. She loves the horses.” Ms. Kelly was extremely communicative with her smile and her beautiful face.

Another resident, Edith Sutter, said she’s been at Meadow Ridge only two months. “This is a little unusual. I didn’t expect anything like this,” she said. “I think it’s great. A good human touch to it. I did some feeding and a lot of petting.”

Mary Swallen, who also fed and petted a horse, said, “It’s been nice. I had fun.”

“They’re wonderful,” said Stanley Andrysek. “It’s nice to see the horses.”

HORSE (Humane Organization Representing Suffering Equines) of CT SENIORS (Society of Equines Nurturing Individuals of Retirement Status), according to Ms. Curry, is an organization that rescues horses.Next.....

Thursday, September 27, 2007

Writing As Therapy

Medical Student Aphasia: The Language of Medicine

"Aphasia" is the loss of the ability to produce or comprehend language. The first day of med school is typically a period of aphasia for the young Medi. He or she enters a world in which obscure terms become common parlance, and the terms flow freely from the mouths of experienced practitioners. This lack of knowledge, this pseudo-aphasia, is of course a necessary part of the learning process, but learning to speak in medicine is unlike learning any other language in the world.

One of the most challenging aspects of learning medicine is learning how to speak the language. Although I have learned to speak in many abstract languages over the years (English, Spanish, Hindi, programming languages, social languages), learning "medicalese" has proved to be quite daunting. The breadth of the vocabulary nearly matches a modern spoken language. The time in which one has to learn the language is brief, relative to other languages. The words are complex and not always easily related. The presence of multiple synonyms and eponyms (using a person's name to describe a disease) complicates the picture. Yet, somehow, after a few years, we as students slowly begin to make sense of the terminology and begin to take ownership of the medical words we produce.
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Thursday, August 30, 2007

Cognitive Stimulation Using The Serper Method™

Summary: The Serper Method™ is a cognitive stimulation program that emphasizes personal and cultural information, along with social and conversational skills. Although more testing is needed, anecdotal reports and results of a small pilot program are encouraging.

Dr. Lynn Serper, a teacher for children with learning disabilities, was in her late 40s when she suffered a ruptured brain aneurysm, then a stroke and fell into a coma. When she awoke, she couldn’t talk, read, write or think clearly.

Ignoring her doctors’ pessimism about her condition, she decided to put together a recovery program for herself based on exercises she had developed for the classroom. “If children with learning disabilities could learn from my methods, why couldn’t I?” she says.

She attributes her eventual recovery to her program, which combined reading exercises with information about history, geography and current events. After working through the program for six years, she was able to complete a dissertation, and earned a doctorate in Cognitive Education.

During her recovery, she refined the exercises to develop The Serper Method, a cognitive stimulation program for people with dementia, aphasia [loss of ability to speak or understand speech] and traumatic brain injury. In her book, BRAINSTORMING: The Serper Method of Brain Recovery, Re-Growth and Vitality, Dr. Serper tells the story of her illness and recovery, and how she developed her program. She has also published a series of workbooks which can be used by individuals, or in group or private sessions led by someone trained in the The Serper Method.

A Different Approach to Cognitive Stimulation

Because of Dr. Serper’s background, The Serper Method emphasizes personal and cultural information, as well as social and conversational skills.

From her experience as a teacher, Dr. Serper knew that children seemed to learn more when the learning process was related to their culture and their interests. And in her opinion, as her students learned more, their self-esteem and socialization skills increased.

She applied the same concepts when developing her workbooks. “The stories in the workbooks are true and inspirational,” she says. “The history is drawn from the American experience, often within the lifetime of the learner, and geography is based upon location, facts and tales from the different regions of the United States. In this re-learning, individuals have an opportunity to gather information for conversations based on memories and experiences.”

Comparing her method to other cognitive stimulation programs, Dr. Serper says she thinks “both methods effectively offer individuals ways to strengthen brain function, though by different means. The Serper Method adds a focus on conversation and social interaction. In a perfect world, persons would have the opportunity to take part in both programs.”

Initial Results

Through her company Brain Enhancement Services, Inc., Dr. Serper provides consulting and training services based on her method. She reports that she has been able to stabilize the cognitive abilities of persons with dementia and that two community programs using her method have shown encouraging results, either improving/stabilizing cognitive abilities or increasing socialization.

In addition, Boston University Researchers conducted a six month pilot program to test whether The Serper Method could improve memory and cognitive and social functioning for persons with early-stage Alzheimer’s disease. According to Dr. Serper, focus groups and questionnaires showed that participation improved self-image, conversation, socialization and interest in daily experiences. However, standard neuropsychological tests did not show improved scores for participants. More testing with a larger group is needed to confirm these results.

The Workbooks

“Following my stroke,” Dr. Serper says, “I found that losing access to factual information of the past limited my ability to understand the information of each present day. Reading the newspaper was confusing since I had limited information of past events and struggled with concepts and understanding. It was amazing to me how much of what we all know and learn is based upon the foundations and building blocks that were learned in the past. I felt like all the knowledge and categorization of that knowledge was no longer available to me.” She focused on the foundations she felt she couldn’t access – history and geography – when developing her workbook series.
Serper_workbook
“The workbooks contain predominantly frustration-free activities,” she says, “with lots of repetition, or memory stimulation, in the form of puzzles, brain twisters and a reference or clue system for answering questions. The goal is exercising different segments of the brain.”

Can persons with early-stage dementia get results by going through the workbook exercises on their own? “I believe that most persons with MCI [Mild Cognitive Impairment] or early-stage dementia will need to be taught how to use The Serper Method over a period of a month or two,” she says. “Individuals with mid-stage dementia will need the assistance of a Cognitive Educator [her trademarked term for someone trained to guide learning sessions based on her method]. Family members can also be trained to guide, if they would like.” CD recordings of the workbooks are available for those with visual, reading or speech limitations.

Whether or not a person with dementia is using her method, Dr. Serper has some advice for them. “Individuals and families should know that learning and socialization does not end with a diagnosis,” she says. “As long as there are healthy brain cells there is hope for enjoying life experiences and increasing life’s vigor and possibilities.“