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Thursday, April 23, 2009

Aphasia caregivers

Caregivers for persons living with aphasia (PLWA) are often misinformed, confused, scared, and overwhelmed when their loved one experiences a stroke with aphasia. I've found that not many therapists or doctors give the caregivers the right kind of information--what is it? Will it get better? Who can I talk to? Does anyone else have it? and so on. Shockingly few medical personnel will give information about aphasia support groups or the National Aphasia Association website. Very few couples are given encouragement to continue therapies after the insurance runs out. No one is given hope for progress, it seems. If you have hope, you will often be told that you are in denial about your spouse's capabilities.

Frequently, I will see older couples who have been married for 40+ years, in which the husband now has aphasia and the wife is now the primary caregiver. Often, but not always, the husband was the main.........NEXT...........

Posted by iRDMuni at 9:19 AM  

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