Last summer Mercy Gilpatric, an elderly North Side woman, had a stroke that wiped out her language abilities. Now, with the help of a "virtual therapist," she is regaining her language, one sentence at a time.
Wednesday, April 29, 2009
Posted by iRDMuni at 1:52 PM
Friday, April 24, 2009
Visiting Dyscover this morning; http://dyscover.ndo.co.uk: this is a local support group for people with aphasia or dysphasia – no speech or disrupted speech, usually because of stroke or brain disease. As you talk with them, you have to wait while they find the words they want to say, and test out what you have understood to make sure you picked it up right. One interesting positive for the group was the chance to talk about interesting topics in discussion groups. At home, they have discussed everything with their spouse, and visitors often do not wait comfortably for them to take time to speak, so they don’t get the chance to spread their wings in a discussion like the rest of us do over coffee or a meal break.
I connect it with people’s response to hearing that you have cancer or you’re dying; people don’t know how to respond to you, so you become isolated. My ambition for the future: we should all learn how to take time to listen to people.
Posted by iRDMuni at 3:16 PM
Thursday, April 23, 2009
Caregivers for persons living with aphasia (PLWA) are often misinformed, confused, scared, and overwhelmed when their loved one experiences a stroke with aphasia. I've found that not many therapists or doctors give the caregivers the right kind of information--what is it? Will it get better? Who can I talk to? Does anyone else have it? and so on. Shockingly few medical personnel will give information about aphasia support groups or the National Aphasia Association website. Very few couples are given encouragement to continue therapies after the insurance runs out. No one is given hope for progress, it seems. If you have hope, you will often be told that you are in denial about your spouse's capabilities.
Frequently, I will see older couples who have been married for 40+ years, in which the husband now has aphasia and the wife is now the primary caregiver. Often, but not always, the husband was the main.........NEXT...........
Posted by iRDMuni at 9:19 AM